HI, I'M JASON!

I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.

We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”

Thank you for coming on this epic journey with us!


LATEST FROM THE BLOG

In other news, Jonny apparentl…

In other news, Jonny apparently has progressive hearing loss and the audiologist is advising us to look into hearing aids. 😔 We don’t do “routine checkups” around here. #kabukisyndrome #MyRareTreasure #ausomeIn other news, Jonny apparently has…

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A “work-in-progress”


Mama has had the week off of work, which has been nice, but also is not part of our routine (Mama being home on school…

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Jojo ABSOLUTELY rock…


Jojo ABSOLUTELY rocked his dentist appointment yesterday. The last appointment we had was an absolute train wreck. (The…

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On your special day,…


On your special day, buddy, May the Lord grant you wisdom, knowledge and understanding as you grow into the person He…

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I’m extremely blesse…


I’m extremely blessed. It feels like it’s midnight but it’s like 9:30. I feel exhausted. Jojo isn’t really tired. He…

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Just sayin……


Just sayin... Original Facebook Post.

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You know it’s serious business…


You know it's serious business when Jonny asks for the melatonin to fall asleep. Original Facebook Post.

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Just got his hair cut…


Just got his haircut. It is the 2nd time in a row we have not had a single incident and she even used SCISSORS this…

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What are you guys up to today? (video)


What are you guys up to today? We are having sort of a "lazy Saturday" here. Original Facebook Post.

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What I wish I would have known” when Jojo was diagnosed…


Sometimes I start to think about "what I wish I would have known" when Jojo was diagnosed, or maybe what I would tell…

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It’s an hour past be…


It’s an hour past bedtime. I’m laying on the floor of his room. He’s rolling all over me, occasionally kicking me in…

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How do you guys do with Halloween?


How do you guys do with Halloween? Do you do parties? Costumes? Trick-or-treating? It’s tough for us this year. Too…

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We’ve had a heck of …


We've had a heck of a busy weekend, but let me just share this. Jojo was sliding his shoes down the railing. I tried to…

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Way to go, Jojo!


A year ago, Jojo had one word he could communicate verbally ("done"). We have been working on imitation for the last…

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Who’s with me. RIGHT…


Who's with me. RIGHT?? NEVER LET THE TABLETS/PHONES DIE!! Jonah will immediately throw said device across the room.…

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Bedtime. I’m laying …


Bedtime. I’m laying on the floor holding the door shut so Jojo doesn’t get out. Jojo’s next to me. “Let’s go play!!…

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When Jojo was diagnosed with autism…


When Jojo was diagnosed with autism, I had to throw all my own expectations of what his future would look like out the…

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