So Jonny turned 14 t…


So Jonny turned 14 today. I can’t even begin to describe how proud I am of him. Not just because he is a year older.…

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Absolutely. It’s so …


Absolutely. It’s so nice to have people who “get it” and not have to apologize when Jojo is being “Jojo.” [love this…

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What’s your favorite…


What’s your favorite “scripted response?” My favorite scripted response of Jojo’s is (while he’s laughing) “‘ALL DONE’…

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So this is our curre…


So this is our current issue with Jonny, who is turning 14 this month. Jonny was born with several medical issues. He…

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A poem I wrote a cou…


A poem I wrote a couple years ago, while laying on the floor in Jojo’s room in the wee hours of the morning…

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Why do we celebrate …


Why do we celebrate #smALLVICTORIES? Because (read image)… #ausome

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No caption needed….


No caption needed. 🥹

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Yep. Pretty much. Ex…


Yep. Pretty much. Except Jonah will shut the door in my face and then lock it. I’ve lost track of how many locks I’ve…

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Welcome to our house…


Welcome to our house.. Here are some things to know about us. Don’t mind all the lined up cars and car tracks all over…

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How have I been?…


How have I been? It’s hard to say. I feel tired. Not the kind of tired like I need to sleep (although there is that),…

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